11.12.09
How To Tell?
This post is going to be even more personal that I usually am about my experiences. Those who have issues with bisexuality or sex outside of marriage should skip this post and come back tomorrow for more about dehisience.
First, for anyone that hasn’t read my Twitter or Facebook profile or doesn’t know me personally, I’m bisexual. That means that I am attracted to both men and women. Not ALL men and not ALL women. Just, well, just the ones I think are cute.
When I realize six years ago that I’m attracted to both genders, hubby and I sat down and we had a series of discussions. Several of those discussions covered dating. Thanks to a book called “The Bisexual’s Guide To The Universe” we laid down rules that we were both comfortable with so that I could actually experience what it would be like to be with another woman.
That was four years ago.
I’ve been on a few dates and even had a short term girlfriend. Nothing ever happened though.
Now I’ve met someone and I like her. If things keep progressing I can see where this might go.
But there’s a problem.
I have NO idea how to tell her about what happened. How do you tell someone that you’re…incomplete? I’m sure divorced and single cancer survivors have had to go through this. And I understand that it’s not just something you blurt out.
Nothing puts a damper on a fun evening like “Oh by the way my boobs rotted off, I had to get them reconstructed and in case I haven’t freaked you out enough yet, I have no nipples.”.
Yeah. THAT’S a real show stopper.
I don’t want to just give her my blog URL either. That’s a WHOLE lot of trauma right there as my regular readers know. And I REALLY like this woman. I don’t want to scare her away.
I’m thinking that if or when this turns romantic, that’s when I’ll tell her. But I have to tell her soon enough that it doesn’t seem like I’m keeping secrets but not so soon that I scare her off. She’s had to deal with enough medical crap herself lately as it is.
As for the actual telling part, I’ve learned that starting with the phrase “We need to talk.” or “There’s something I have to tell you”. usually sets someone on edge. I need to find an opener that will set her at ease. Maybe “There’s something I want to trust you with”. Perhaps “Can I confide in you?”.
I guess this is just something I’m going to have to work on. I’ve got about a week before I see her next, so I have a bit of time. Trust me, you all will probably hear about this again.
After all you already know that Ken enjoys the Twins and he doesn’t seem to care that I don’t have nipples yet. But that’s because my first set was so sensitive that he couldn’t really do anything with them anyway. This is definitely a different twist to this tale though.
11.06.09
The Calm
After the second surgery there was actually a brief time when I thought that everything might be alright after all.
I should have known better.
I don’t know HOW I should have known better, unless past experience told me that the HiQ had no real idea what he was doing and the man was/is a menace and a disgrace to the medical profession.
I had just hoped that the worst was over.
And for a little while everything WAS okay. I actually had a period of about 12 days when everything looked like it was going to work out. Sure I was going to need one more surgery but at least I didn’t have to deal with the necrosis. I just changed the gauze over the surgical tubing drains and changed dressings like I was told.
Little did I know what was ahead of me.
11.04.09
Check Up Part 3
I forgot to include something in yesterday’s post. Dr. Elliott had mentioned that he wanted to make sure that my breast tissue has become softer. For the first few weeks right after surgery, my new boobies were really hard and stiff. They were actually very hard. It reminded me of how hard my breasts were after the initial implant surgery.
I pointed out a place across the top of my left breast that, to me, felt harder that the rest of the breast tissue. After gently prodding at it a bit in examination Dr. Elliott explained that the harder area is the top of the muscle flap. He also explained that in comparison to what HE meant my hard it was actually very soft and pliant.
Something that I found to be extremely bizarre is that where I thought had keloid scarring, upon examination, appeared to have nothing of the sort. I am chalking this up to a slightly poor fitting Caique bra from Lane Bryant. It is just a little too small and it makes the scar line feel a little lumpy after a whole day of wearing that type of bra.
That’s one more reason to have a proper bra fitting done. Even if you think it’s been done properly, sometimes it hasn’t. Even though their customer service is really, REALLY bad,
11.03.09
Check Up Part 2
Dr. Elliott is EXTREMELY pleased with how well the Twins are doing. He’s thrilled with how much they’ve softened and how well the scars are fading. He’s also pleased with how my back looks.
While he was looking and “groping” (forgive me Dr. Elliott, I don’t know what else to call it when you check to see how they feel) we talked about the things I was curious about. First, I found out the reason my back has that plasticky feeling like someone set down a layer of plastic wrap across a wide section of my back.
The reason for that is that he basically disected my back, probably doing more surgical maneuvering back there than in my chest. The crackly feeling is where scar tissue has formed in kind of a sheet. It will probably take another six months or so for that to release. He gave the same prognosis for the numb areas, although those could take even longer.
We also talked about how subjective the term “recovery” is. You “recover” in the recovery room. You “recover” in the hospital. You “recover” after the surgery and that can take over a year dependent on which aspect of healing we’re talking about. For instance it took me about six months to get my endurance level back to where it was. Some people take more time. Others take less.
It’s subjective.
We also discussed nipple reconstruction. I told him it probably wouldn’t be until this time next year. He said it didn’t matter. We could do it tomorrow, next week or five years from now. Personally *I* was just relieved that he wasn’t planning to retire any time soon.
Another thing we touched on was doing a breast lift. His concern is that there wouldn’t be much point to it because as heavy as the Twins are, they would end up right back where they are in no time at all. I would have to lose at least 30 pounds before it would become feasible.
My big issue with that is around that point the Twins will start getting smaller. As I’ve written before, to watch them shrink away is like watching my original breasts rot away. I just can’t handle that right now. I just can’t. As i sit here typing I can feel the panic rising and the tears filling my eyes. I CAN’T lose them again.
Okay, okay, I know logically that I’m not losing them. They’re a part of me and I love them dearly. I’m just SO not ready for that. And for the first time in my life I’m content to weigh 218.
We also discussed the two little places on my sides that look like little handles. he called them puckers I think. (Dr. Elliott, if you read this please leave a comment and correct my verbage). He said they were normal and occurred as part of the surgery. We could do a little lipo to lessen them but to tuck the skin would require another incision. Dr. Elliott didn’t seem very keen on another couple of incisions on me and I’m really quite okay with that. He explained that when you do the tummy tuck type breast reconstruction you get the same thing at the hip bone area.
Dr. Elliott made a point of mentioning that he was SO happy we had gone with the latissimus flap reconstruction rather than the tummy tuck. We both had been extremely concerned about possible complications. The tummy tuck procedure simply carries more risk and more risk was the LAST thing I needed.
So all in all the Twins are doing great. He wants to see me again Aprilish for my one year check up. In the mean time I REALLY hope that he checks in. He seemed really interested in my blogs.
And in case I haven’t said it enough, he’s an amazing doctor. Every woman who has to go through reconstruction for ANY reason should go see Dr. Elliott at Atlanta Plastic Surgery (http://www.atlplastic.com).
11.02.09
Seven Month Checkup
Today I’m going to see Dr. Elliott for my seven month check up. Normally it would be six months but he cut me a little slack because life has been a bit insane lately with Ken’s new job, me taking over our business, school and general family issues.
I’m sure he’s going to say everything is okay. There are some things I want to cover with him though. First, a wide swath of my back still feels like it is covered in plastic wrap. I wish I had some other way to explain it. It just feels like a big square of my back has had a cracky plastic coating painted over the top. Or maybe like someone laid down wide strips of packing tape. I really hope he understands this analogy.
I also still have numb spots in places. The other night my right armpit itched abominably but I have no sensation in that area. You wanna talk weird? Try itching someplace that’s numb. THAT’LL throw your brain for a loop.
I also want to get his opinion on the small area of keloid scarring. Please see the entry on 9/30/09 for more about this topic. It’s not much but I think he ought to know.
I also need to tell him that we won’t be able to afford my nipple reconstruction surgery until around this time next year. Then I want to ask him what he thinks about the Japanese practice of inserting pearls under the skin for nipple protrusion. Unfortunately I cannot find a reference to that at the moment. As experienced as Dr. Elliott is though I’m sure he’s heard of it IF it’s something that is actually done.
Until recently about 2/3 of all nipple reconstructions failed. Dr. Elliott has gone to incredible lengths to reassure me that with current techniques that won’t happen. It IS normal for there to be some shrinkage though.
I’ll report more on this later.
10.13.09
Nipples Revisited
This weekend Ken and I drove down to Disney’s Vero Beach Resort. They have this great little second story restaurant that overlooks the ocean. We like to go out there, watch the ocean, enjoy the breeze off the water and get a little something to nibble on.
Saturday afternoon as we were getting ready to leave a couple came up from the water and sat down. She must have been cold because her nipples were fully extended through her swimsuit.
Up until that moment I was completely satisfied with the reconstructed breasts I have. Please understand that I love my Twins. The square-ish corners have evened out nicely. They’ve got a really nice rounded look to them now. They’re also finally soft and pliable while still being somewhat firm. Even without all those changes I would still be happy beyond words to have them.
I was really startled to realize that a part of me still doesn’t feel complete. I’m definitely not mentally ready to have another surgery. Even a minor one that only involves topical tissues. If I WAS ready we can’t afford it for a while yet. The nipple reconstruction will end up being around $9,000. About $7K for the surgery and the rest is the fee for the outpatient surgical facility.
Dr. Elliott always said that I would know when I was ready to have the first surgery. He said (paraphrased) that there would come a point where the feelings I had about the mangled wreckage that once was my chest would outweigh the fears I had and I would know when I was ready.
It is the same with nipple reconstruction. I know I am not ready for another surgery yet, financial situation aside. Having that moment of realization that I miss having nipples, however, is the first step in that direction.
10.09.09
Persistent Situational Depression
April 16th was a very good day. Aside from the morphine I was fortunate enough to get my breasts back. Not the originals, of course. These are the new and improved version. In JumboVision.
Yet it has taken me until today to see even more than a glimpse of my old self. I’ve been going through the motions of living distracting myself with new projects (http://www.fledgelingskeptic.wordpress.com) and just getting through the day-to-day aspects of living.
This afternoon I saw, for just a little while, that adventurous me. This is the part of me that takes unrestrained joy in just throwing a handful of clothes in a bag, getting in the car and driving just to see where we end up. If I had my way I wouldn’t be writing this entry right now. I’d be packing and getting ready to leave for who knows where.
Sadly, I don’t get to have my way. So that’s a bit depressing. This is the first time in years that I’ve seen that side of myself and it has been denied. Hubby would rather make plans for the weekend and stick with those.
While I’m depressed that I’m not going to be able to express that long-buried part of myself, I am so very happy to see that it still exists. I really thought it had long since died off. No more spontaneity. Ever.
I think that I had just gone through so much for so long that I got stuck in a situation-based depressive state. Now, almost six months after reconstruction, I’m finally returning to my old self.
I think it’s probably going to take a little while longer. I still have quite a bit of emotional recovering to do. I’m looking forward to the time that I don’t get sad during the first few weeks of October. I know that time will come. I just have to get to that point.
As people keep telling me, healing takes time. It’s not just the physical body that needs to recover. It’s everything else; the mental and emotional as well. It’s just a matter of time.
10.01.09
Things They Don’t Tell You
As I continue to heal I figure things out. The latest is the reason my chest ached for longer than it could have. Keep in mind before the initial surgery I was a B+/C- cup. Little boobies…by comparison anyway.
I had heard about back pain caused by larger breasts but no one ever told me that they could ache and hurt just from their own weight. For quite a while after the surgery I wore shelf bras because they were so comfortable. Even after I was cleared to wear a bra, I still, for some time, preferred to wear the shelf bras.
BUT when I did, there were times when my cleavage ached as though there was a small elephant standing on it. It wasn’t until I talked to my best friend about it. Her girls are almost the same size as mine and are completely natural so I know she has experience with this.
I’m just chalking this up to another thing they just don’t think to tell you.
09.30.09
Keloid Scars
I may I have covered this topic before but not as it applied to me, personally. I noticed something last night after I took off my bra. There is a two to three inch area on the underside of each of my new breasts that has some keloid scarring. These spots didn’t have tape on them consistently as they are furthest out towards my sides and the tape kept coming off there.
Imagine if skin could simmer like water and then be frozen in that state. That’s what keloid scars look like. Here’s a photo of keloid scars on someone’s chest.
Doctors do not understand exactly why keloids form in certain people or situations and not in others. Changes in the cellular signals that control growth and proliferation could be related to the process of keloid formation, but these changes have not yet been characterized scientifically.
The methods now available to treat keloids are:
- Cortisone injections (intralesional steroids): These are safe and not very painful. Injections are usually given once per month until the maximum benefit is obtained. Injections are safe (very little steroid gets into the bloodstream) and usually help flatten keloids; however, steroid injections can also make the flattened keloid redder by stimulating the formation of more superficial blood vessels. (These can be treated using a laser; see below.) The keloid may look better after treatment than it looked to start with, but even the best results leave a mark that looks and feels quite different from the surrounding skin.
- Surgery: This is risky, because cutting a keloid can trigger the formation of a similar or even larger keloid. Some surgeons achieve success by injecting steroids or applying pressure dressings to the wound site after cutting away the keloid. Radiation after surgical excision has also been used.
- Laser: The pulsed-dye laser can be effective at flattening keloids and making them look less red. Treatment is safe and not very painful, but several treatment sessions may be needed. These may be costly, since such treatments are not generally covered by insurance plans.
- Silicone sheets: This involves wearing a sheet of silicone gel on the affected area for several hours a day for weeks or months, which is hard to sustain. Results are variable. Some doctors claim similar success with compression dressings made from materials other than silicone.
- Cryotherapy: Freezing keloids with liquid nitrogen may flatten them but often darkens the site of treatment.
- Interferon: Interferons are proteins produced by the body’s immune systems that help fight off viruses, bacteria, and other challenges. In recent studies, injections of interferon have shown promise in reducing the size of keloids, though it’s not yet certain whether that effect will be lasting. Current research is underway using a variant of this method, applying topical imiquimod (Aldara), which stimulates the body to produce interferon.
- Fluorouracil: Injections of this chemotherapy agent, alone or together with steroids, have been used as well for treatment of keloids.
- Radiation: Some doctors have reported safe and effective use of radiation to treat keloids.
This is not a very common complication, but it can happen. There doesn’t seem to be a bias. It happens equally in men and women as well as all ethnicities.
08.07.09
Why The Reboot?
I mentioned in yesterday’s blog post that as of Monday I would be starting my story over from the beginning. I’m sure many of you are wondering why. If you go back to my early blog posts you’ll see that although there is a little bit of detail, there are some unanswered questions.
When I first started this blog I was very emotionally unstable. I left out a great deal of detail simply because it was far too painful for me to talk about then. Now that I can think more clearly and have more distance, I can tell my story much better. The more details I can convey, the more benefit this blog has for you, the reader.
I’ll be taking the weekend off. Starting Monday 9/10/09 I’ll start back at the beginning. By the beginning, I mean I’ll talk about the self esteem issues behind the first plastic surgery and the role I feel society and commercialism contributes to low self esteem. In subsequent episodes I’ll also be talking about tuberous breasts and why they are considered a deformity.
To quote Heath Ledger’s character William in “A Knight’s Tale”: Welcome to New World. God save you, if it is right that he should do so.
